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  • Thursday, Oct 12th
    8:15 AM – 9:30 AM ET
    Quantitative Bioethics: The Promise and Challenges of Using Advanced Quantitative Methods in Empirical Bioethics
    Location: Laurel CD (Fourth Floor)
    Presenter: Jonathan Herington, PhD ((he/him/his)) – University of Rochester
    Presenter: Juan C. Rojas, MD MS – Rush University
    Presenter: William F. Parker, MD PhD – University of Chicago
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Community engagement in research
    Location: Galena (Fourth Floor)
    Presenter: Shelly Benjaminy, PhD, HEC-C – Shirley Ryan AbilityLab
    Presenter: Stephanie A. Kraft, JD (she/her/hers) – University of Washington School of Medicine
    Presenter: Cory E. Goldstein, Phd, MA (he/him/his) – Ottawa Hospital Research Institute
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Diversity in Research Ethics
    Location: Laurel AB (Fourth Floor)
    Presenter: Erin Paquette, JD,MD,MBE,HEC-C ((she/her/hers)) – Ann & Robert H. Lurie Children's Hospital of Chicago; Northwestern University Feinberg School of Medicine and Pritzker School of Law (by courtesy)
    Presenter: Elizabeth Chuang, MD, MPH ((she/her/hers)) – Montefiore Medical Center/Albert Einstein College of Medicine
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Pediatric research ethics
    Location: Atlantic (Third Floor)
    Presenter: Rafael Escandon, DRPH,PHD,MPH, HEC-C ((he/him/his)) – DGBI Consulting, LLC
    Presenter: Sabina Rubeck, MPH – Case Western Reserve University, School of Medicine
    Presenter: Aurora Washington, PHD ((she/her/hers)) – University of North Carolina- Chapel Hill
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    A Pragmatic Neuroethics Framework for Research Ethics Consultation: Embracing Pluralistic Stakeholder Engagement in Research Ethics Deliberations
    Location: Galena (Fourth Floor)
    Presenter: Shelly Benjaminy, PhD, HEC-C – Shirley Ryan AbilityLab
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Adaptive Engagement: Applying an Old Concept in a New Direction to Promote Diversity, Inclusivity and Equity in Research
    Location: Laurel AB (Fourth Floor)
    Presenter: Erin Paquette, JD,MD,MBE,HEC-C ((she/her/hers)) – Ann & Robert H. Lurie Children's Hospital of Chicago; Northwestern University Feinberg School of Medicine and Pritzker School of Law (by courtesy)
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Advancing equity in artificial intelligence-enabled mobile health tools: A focus group study of Hispanic and Latinx community perspectives
    Location: Galena (Fourth Floor)
    Presenter: Stephanie A. Kraft, JD (she/her/hers) – University of Washington School of Medicine
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Gene Therapy Trials and Pediatric Assent – Is it Time to Re-Think or Align with Organ Transplant?
    Location: Atlantic (Third Floor)
    Presenter: Rafael Escandon, DRPH,PHD,MPH, HEC-C ((he/him/his)) – DGBI Consulting, LLC
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Parent Attitudes Towards Using Brain Imaging Technologies for Pre-symptomatic Identification of Autism Spectrum Disorder
    Location: Atlantic (Third Floor)
    Presenter: Aurora Washington, PHD ((she/her/hers)) – University of North Carolina- Chapel Hill
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Preparing to parent a child with a genetic condition: Key stakeholders weigh in on prenatal genetic testing and its implications
    Location: Atlantic (Third Floor)
    Presenter: Sabina Rubeck, MPH – Case Western Reserve University, School of Medicine
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Race-Making – The Imperative to Include how Biomedical Research Contributed to Racism in Research Ethics Curricula
    Location: Laurel AB (Fourth Floor)
    Presenter: Elizabeth Chuang, MD, MPH ((she/her/hers)) – Montefiore Medical Center/Albert Einstein College of Medicine
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    Research Participation as Labor: Models for Respect, Inclusion, and Compensation
    Location: Laurel CD (Fourth Floor)
    Moderator: Amelia Hood, MA ((she/her/hers)) – Johns Hopkins Berman Institute of Bioethics
    Presenter: Marielle Gross, MD, MBE – University of Pittsburgh Medical Center
    Presenter: Isaac Chan, MD, PhD – University of Texas Southwestern
    Presenter: Samantha Horn
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    9:45 AM – 11:00 AM ET
    The roles and responsibilities of patient partners in the development of research ethics guidelines
    Location: Galena (Fourth Floor)
    Presenter: Cory E. Goldstein, Phd, MA (he/him/his) – Ottawa Hospital Research Institute
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    2:30 PM – 3:45 PM ET
    Special Considerations for Investigators and IRBs in Supporting the Inclusion of Underrepresented Populations in Research
    Location: Laurel CD (Fourth Floor)
    Presenter: Jessica Hirsch, MA, D. Bioethics, CIP – Mayo Clinic
    Moderator: Michelle McGowan, Ph.D. – Mayo Clinic
    Presenter: Karen Meagher, Ph.D. (she/her/hers) – Mayo Clinic
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Informed Consent in Research
    Location: Essex C (Fourth Floor)
    Presenter: Benjamin Krohmal, JD, HEC-C (he/him/his) – Medstar Washington Hospital Center
    Presenter: Mark Sheehan, PhD ((he/him/his)) – University of Oxford
    Presenter: Lois Shepherd, JD – University of Virginia Medical Center
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Behavioral and cognitive research in diverse populations: Experiences of the All of Us research program integrating ethical, legal and social implications (ELSI) in research design and implementation
    Location: Dover AB (Third Floor)
    Presenter: Subhashini Chandrasekharan, PHD – National Institutes of Health, All of Us Research Program
    Presenter: Cecelia Tamburro, B.A. (she/her/hers) – Yale School of Medicine
    Moderator: Heather Sansbury, PhD – National Institutes of Health, All of Us Research Program
    Presenter: Karl D. Cooper, JD (he/him/his) – American Association on Health & Disability
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Consent and the shift to governance
    Location: Essex C (Fourth Floor)
    Presenter: Mark Sheehan, PhD ((he/him/his)) – University of Oxford
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Exempted and Exhausted: A Survey of Institutional Hurdles to Conducting “Exempt” Human Subjects Research
    Location: Essex C (Fourth Floor)
    Presenter: Benjamin Krohmal, JD, HEC-C (he/him/his) – Medstar Washington Hospital Center
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Interpersonal Communication in Community-Engaged Research
    Location: Chasseur (Third Floor)
    Presenter: Susan Brown Trinidad, MA, PhD – University of Washington
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Trial Prioritization as a Bioethics Issue
    Location: Bristol (Third Floor)
    Presenter: Holly Fernandez Lynch, JD, MBE ((she/her/hers)) – University of Pennsylvania
    Presenter: Kate Saylor, Ph.D. ((she/her/hers)) – Perelman School of Medicine, University of Pennsylvania
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Views from the Frontlines: Physician Perspectives on the use of AI in Behavioral Health
    Location: Falkland (Fourth Floor)
    Presenter: Austin M. Stroud, MA – Mayo Clinic
    Research Ethics and Social Sciences
  • Thursday, Oct 12th
    4:00 PM – 5:15 PM ET
    Waiving Consent for Comparative Effectiveness Research: What Three Legal Cases Tell Us
    Location: Essex C (Fourth Floor)
    Presenter: Lois Shepherd, JD – University of Virginia Medical Center
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    Data sharing and participation
    Location: Galena (Fourth Floor)
    Presenter: James M. DuBois, DSc, PhD – Washington University in St. Louis
    Presenter: Kayte Spector-Bagdady, JD,MA,HEC-C ((she/her/hers)) – University of Michigan Medical School
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    International Approaches to Stakeholder Research
    Location: Essex C (Fourth Floor)
    Presenter: Yukiko Asada, PHD – National Institutes of Health
    Presenter: Jake Earl, PHD,HEC-C – Walter Reed Army Institute of Research
    Presenter: Stephen Molldrem, PhD ((he/him/his)) – The University of Texas Medical Branch
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    Barriers and facilitators to genomic data sharing: Ongoing tensions between federal expectations and researcher practice
    Location: Galena (Fourth Floor)
    Presenter: Kayte Spector-Bagdady, JD,MA,HEC-C ((she/her/hers)) – University of Michigan Medical School
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    Building an inclusive ethics agenda for the psychedelic medicine renaissance
    Location: Waterview CD (Lobby Level)
    Presenter: Amy L. McGuire, JD,PHD ((she/her/hers)) – Baylor College of Medicine Center For Medical Ethics
    Presenter: Nese Devenot, PhD – University of Cincinnati
    Presenter: Andrew Peterson, PhD – George Mason University
    Presenter: Dominic Sisti, PhD – University of Pennsylvania
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    Examining Federally Qualified Health Center Patient-Participant Motivations in the All of Us Research Program
    Location: Galena (Fourth Floor)
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    Exchanging Words: Engaging the Ethical and Practical Challenges of Sharing Qualitative Research Data
    Location: Galena (Fourth Floor)
    Presenter: James M. DuBois, DSc, PhD – Washington University in St. Louis
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    Expanding the Concept of Social Value in Health-Related Research
    Location: Essex C (Fourth Floor)
    Presenter: Jake Earl, PHD,HEC-C – Walter Reed Army Institute of Research
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    For a Materialist Bioethics
    Location: Iron (Fourth Floor)
    Presenter: Jonathan D. Shaffer, PHD ((he/him/his)) – University of Vermont
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    8:00 AM – 9:15 AM ET
    Results of the Views in Bioethics Survey
    Location: Laurel AB (Fourth Floor)
    Presenter: Leah Pierson, BA ((she/her/hers)) – Harvard University
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    9:30 AM – 10:45 AM ET
    Community consultation for Exception from Informed Consent (EFIC) trials: Lessons for public engagement in medical research
    Location: Dover AB (Third Floor)
    Presenter: Justin T. Clapp, PhD, MPH – University of Pennsylvania
    Presenter: Samantha Stein, BA, MA ((she/her/hers)) – Stanford University
    Presenter: Mark Sheehan, PhD ((he/him/his)) – University of Oxford
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 AM ET
    Reproductive Research Ethics
    Location: Chasseur (Third Floor)
    Presenter: Dana Howard, PHD ((she/her/hers)) – Ohio State University College of Medicine
    Presenter: Katherine MacDuffie, PHD,MA ((she/her/hers)) – Seattle Children's Research Institute, University of Washington
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 AM ET
    Research recruitment in abortion clinics: evidence from women asked to donate fetal tissue for research
    Location: Chasseur (Third Floor)
    Presenter: Katherine MacDuffie, PHD,MA ((she/her/hers)) – Seattle Children's Research Institute, University of Washington
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 AM ET
    The Ethics of Abortion Research Post Dobbs
    Location: Chasseur (Third Floor)
    Presenter: Dana Howard, PHD ((she/her/hers)) – Ohio State University College of Medicine
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 PM ET
    Artificial Intelligence and Research
    Location: Falkland (Fourth Floor)
    Presenter: Cambray Smith, BS (she/her/hers) – UNC Chapel Hill
    Presenter: Kelly Michelson, MD,MPH,HEC-C ((she/her/hers)) – Northwestern University/Lurie Children's Hospital
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 PM ET
    Creating inclusive spaces for policy dialogue on the responsible conduct of research: Experience crafting standards for research during commercial space flight
    Location: Kent A-C (Fourth Floor)
    Moderator: Amy L. McGuire, JD,PHD ((she/her/hers)) – Baylor College of Medicine Center For Medical Ethics
    Presenter: Paul Root Wolpe, PhD (he/him/his) – Center for Ethics, Emory University
    Presenter: Vasiliki Rahimzadeh, PhD (she/her/hers) – Baylor College of Medicine Center For Medical Ethics
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 PM ET
    Ethical implications of Precision AI-enabled Clinically Embedded Research (PACER), a novel technology-enabled approach to conducting minimal risk research in outpatient community healthcare settings
    Location: Falkland (Fourth Floor)
    Presenter: Kelly Michelson, MD,MPH,HEC-C ((she/her/hers)) – Northwestern University/Lurie Children's Hospital
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 PM ET
    Losing the “human element”: Patient reflections on the tensions between artificial intelligence and humanized medicine
    Location: Falkland (Fourth Floor)
    Presenter: Cambray Smith, BS (she/her/hers) – UNC Chapel Hill
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 PM ET
    Standards for Explainability: The Role of Stigma and Disease State in Patient Acceptance of Artificial Intelligence-Generated Care
    Location: Dover C (Third Floor)
    Presenter: Meghan E. Hurley ((she/her/hers)) – Baylor College of Medicine
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    3:15 PM – 4:30 PM ET
    Synthetic Data for Drug Development: Epistemic and Ethical Challenges
    Location: Dover C (Third Floor)
    Presenter: Carole Federico, PHD ((she/her/hers)) – Stanford University
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    5:00 PM – 6:15 PM ET
    Pragmatic Trials
    Location: Atlantic (Third Floor)
    Presenter: Isabel M. Astrachan, BA ((she/her/hers)) – Clinical Center, National Institutes of Health
    Presenter: Claire Erickson, PHD,MPA ((she/her/hers)) – University of Pennsylvania
    Presenter: Stephanie Kukora, MD ((she/her/hers)) – Children's Mercy Kansas City
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    5:00 PM – 6:15 PM ET
    Deliberating Genomic Research: Ethical Engagement and Research with Indigenous Communities
    Location: Dover AB (Third Floor)
    Presenter: Jessica Blanchard, PHD,MA – University of Oklahoma
    Presenter: Julie Beans, MPH
    Presenter: Joseph Yracheta, MS (he/him/his) – Native Bio-Data Consortium
    Presenter: Christie Byars-Chavez – Chickasaw Nation
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    5:00 PM – 6:15 PM ET
    Ethical Challenges in First-in-Human Trials of the Artificial Placenta and Artificial Womb: Not all Technologies Are Created Equally, Ethically
    Location: Atlantic (Third Floor)
    Presenter: Stephanie Kukora, MD ((she/her/hers)) – Children's Mercy Kansas City
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    5:00 PM – 6:15 PM ET
    Rethinking Research Risk in Pragmatic Care Trials
    Location: Atlantic (Third Floor)
    Presenter: Isabel M. Astrachan, BA ((she/her/hers)) – Clinical Center, National Institutes of Health
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    5:00 PM – 6:15 PM ET
    The future of Alzheimer’s biomarker disclosure: A pragmatic approach to returning results to participants
    Location: Atlantic (Third Floor)
    Presenter: Claire Erickson, PHD,MPA ((she/her/hers)) – University of Pennsylvania
    Research Ethics and Social Sciences
  • Friday, Oct 13th
    5:00 PM – 6:15 PM ET
    Xenotransplantation in the Media: A Qualitative Content Analysis
    Location: Waterview AB (Lobby Level)
    Presenter: Jordan Liebman, MD, MA (he/him/his) – New York University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    Genome Editing
    Location: Dover C (Third Floor)
    Presenter: R. Jean Cadigan, PhD (she/her/hers) – University of North Carolina-Chapel Hill School of Medicine
    Presenter: John M. Conley, JD, PhD ((he/him/his)) – University of North Carolina
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    Research Regulation
    Location: Iron (Fourth Floor)
    Presenter: Jonathan Herington, PhD ((he/him/his)) – University of Rochester
    Presenter: Elika Somani, B.A. (she/her/hers) – National Institutes for Health
    Presenter: Leslie E. Wolf, JD,MPH ((she/her/hers)) – Georgia State University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    Areas of Consensus and Improvement on Dual-Use Research of Concern (DURC) Risk, Ethics, and Oversight
    Location: Iron (Fourth Floor)
    Presenter: Elika Somani, B.A. (she/her/hers) – National Institutes for Health
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    Constitutional Confidentiality
    Location: Iron (Fourth Floor)
    Presenter: Leslie E. Wolf, JD,MPH ((she/her/hers)) – Georgia State University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    Engaging Patients and the Public to Improve Future Research Conducted with Waivers of Informed Consent
    Location: Essex AB (Fourth Floor)
    Presenter: Emily Largent, JD,PHD,RN ((she/her/hers)) – University of Pennsylvania
    Moderator: Stephanie Morain, PhD, MPH – Berman Institute of Bioethics Johns Hopkins University
    Presenter: David Wendler, MA, PhD – NIH Department of Bioethics
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    Non-Ideal Responsible Conduct of Research
    Location: Iron (Fourth Floor)
    Presenter: Jonathan Herington, PhD ((he/him/his)) – University of Rochester
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    The Public-Private Research Ecosystem in the Era of Genome Editing: Learning from the Past to Shape Future Governance
    Location: Dover C (Third Floor)
    Presenter: John M. Conley, JD, PhD ((he/him/his)) – University of North Carolina
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    7:30 AM – 8:45 AM ET
    Toward Meaningful Distinctions Between Treatment, Prevention, and Enhancement in Human Genome Editing
    Location: Dover C (Third Floor)
    Presenter: R. Jean Cadigan, PhD (she/her/hers) – University of North Carolina-Chapel Hill School of Medicine
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Cancer research
    Location: Galena (Fourth Floor)
    Presenter: Eline M. Bunnik, PhD (she/her/hers) – Erasmus MC
    Presenter: Jazmine Gabriel, PHD ((she/her/hers)) – Geisinger
    Presenter: Renata Iskander, MSc – McGill University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Vulnerable Populations Flash Session
    Location: Heron (Fourth Floor)
    Presenter: Amanda M. Buster (she/her/hers) – Yale University
    Presenter: HUNTER E. CANTRELL, BS – University of Minnesota Medical School (Twin Cities)
    Presenter: Elizabeth Cleek, PHD RN CPNP-PC (she/her/hers) – Medical College of Wisconsin
    Presenter: Sara K. Shaw Green, MSW ((she/her/hers)) – Florida State University
    Presenter: Rosa Lawrence, BA ((she/her/hers)) – University of Colorado Anschutz
    Presenter: Ariel Levchenko, Master of Arts, Bioethics ((he/him/his)) – Baylor College of Medicine
    Presenter: Sean McCormick, MA ((he/him/his)) – Case Western Reserve University
    Presenter: Rachel M. Shenoi, MD ((she/her/hers)) – Baylor College of Medicine
    Presenter: Kate H. Tsiandoulas, n/a – Johns Hopkins University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Coming to a head: parental decision-making for contact and collision sports
    Location: Heron (Fourth Floor)
    Presenter: Rosa Lawrence, BA ((she/her/hers)) – University of Colorado Anschutz
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Ethical Dimensions of Xenotransplantation Experimentation with Humans
    Location: Essex AB (Fourth Floor)
    Presenter: L .Syd M. Johnson, PhD, HEC-C ((she/her/hers)) – Upstate Medical University
    Presenter: Carrie Thiessen, MD, PhD – UW Madison
    Presenter: Abbie Leino, MS, PharmD (she/her/hers) – University of Michigan
    Presenter: Deborah Levine, MD – Stanford University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Ethical Issues in Engaging Lost To Follow Up Youth in HIV Care and Research
    Location: Heron (Fourth Floor)
    Presenter: Sara K. Shaw Green, MSW ((she/her/hers)) – Florida State University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Genetic Diagnoses for Adults with Intellectual Disability: Caregiver Perspectives
    Location: Atlantic (Third Floor)
    Presenter: Stacey Pereira, PhD – Baylor College of Medicine
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Human-centered design and decision-making around risk-reducing gynecologic surgery: Understanding the lifeworld of individuals with Lynch syndrome
    Location: Galena (Fourth Floor)
    Presenter: Jazmine Gabriel, PHD ((she/her/hers)) – Geisinger
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Impact of Precision Medicine on Patient and Caregiver Perceptions of Early Detection of Alzheimer’s Disease Risk
    Location: Heron (Fourth Floor)
    Presenter: Ariel Levchenko, Master of Arts, Bioethics ((he/him/his)) – Baylor College of Medicine
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Perspectives of Family Caregivers on their Role in Cancer Clinical Trial Decision-Making
    Location: Atlantic (Third Floor)
    Presenter: Eric C. Blackstone, MA (he/him/his) – Case Western Reserve University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    Transparency for Clinicians: Information Needs for Healthcare Artificial Intelligence
    Location: Waterview CD (Lobby Level)
    Presenter: Austin M. Stroud, MA – Mayo Clinic
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    9:00 AM – 10:15 AM ET
    What is the survival benefit of receiving unapproved cancer drugs being tested in randomized clinical trials?
    Location: Galena (Fourth Floor)
    Presenter: Renata Iskander, MSc – McGill University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Challenges in Neurologic Device Research
    Location: Galena (Fourth Floor)
    Presenter: Andrew I. Brown, PHD,MA,BA ((he/him/his)) – University of Washington
    Presenter: Saskia Hendriks, MD, PHD ((she/her/hers)) – National Institutes of Health
    Presenter: Erika Versalovic, PhC ((she/her/hers)) – University of Washington
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Protection of research subjects
    Location: Chasseur (Third Floor)
    Presenter: Nicholas G. Evans, PhD, MSME (he/him/his) – University of Massachusetts Lowell
    Presenter: Diana Mendoza-Cervantes, MBE (she/her/hers) – University of Pittsburgh School of Medicine
    Presenter: Michelle T. Pham, PHD – Michigan State University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Sex and Gender in Research
    Location: Iron (Fourth Floor)
    Presenter: Jeffrey Pannekoek, PhD (he/him/his) – Cleveland Clinic
    Presenter: Jennifer Miller, PHD ((she/her/hers)) – Yale School of Medicine
    Presenter: Rebecca Sanaeikia, Ph.D. Student ((she/her/hers)) – University of Rochester
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    “It Gave Me a Purpose”: Participation as Benefit in Brain-Computer Interface Studies
    Location: Galena (Fourth Floor)
    Presenter: Erika Versalovic, PhC ((she/her/hers)) – University of Washington
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    “When these studies are over, they’re not over": continuing trial responsibilities for implantable neural device trials
    Location: Galena (Fourth Floor)
    Presenter: Saskia Hendriks, MD, PHD ((she/her/hers)) – National Institutes of Health
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Clinician Perspectives on the Potential of DBS for Pediatric Patients with Treatment-Resistant OCD
    Location: Chasseur (Third Floor)
    Presenter: Michelle T. Pham, PHD – Michigan State University
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Ethical issues in performance enhancement research methods
    Location: Chasseur (Third Floor)
    Presenter: Nicholas G. Evans, PhD, MSME (he/him/his) – University of Massachusetts Lowell
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Facilitating Expanded Access to Investigational Medicines: Possibilities, Obligations, and Ethical Questions
    Location: Essex AB (Fourth Floor)
    Presenter: Holly Fernandez Lynch, JD, MBE ((she/her/hers)) – University of Pennsylvania
    Presenter: Eline M. Bunnik, PhD (she/her/hers) – Erasmus MC
    Presenter: Alen Agaronov, ScD (he/him/his) – NYU Grossman School of Medicine
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Reconsidering "Sex as a Biological Variable"
    Location: Iron (Fourth Floor)
    Presenter: Rebecca Sanaeikia, Ph.D. Student ((she/her/hers)) – University of Rochester
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Support for BRAIN Pioneers: Understanding and enhancing family and researcher support for participants in neural device trials
    Location: Galena (Fourth Floor)
    Presenter: Andrew I. Brown, PHD,MA,BA ((he/him/his)) – University of Washington
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    10:30 AM – 11:45 AM ET
    Trust but verify? Reliance and agential trust at the intersection of medicine and research
    Location: Chasseur (Third Floor)
    Presenter: Diana Mendoza-Cervantes, MBE (she/her/hers) – University of Pittsburgh School of Medicine
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    1:15 PM – 2:30 PM ET
    Clinical trials
    Location: Galena (Fourth Floor)
    Presenter: Isabella Li, BA – National Institutes of Health
    Presenter: Gail E. Henderson, PhD – UNC School of Medicine, Chapel Hill, NC
    Presenter: Robert Steel, PHD ((he/him/his)) – National Institutes of Health
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    1:15 PM – 2:30 PM ET
    Clarifying Risk-Benefit Ratios: the Case of Coronavirus Challenge Trials
    Location: Galena (Fourth Floor)
    Presenter: Robert Steel, PHD ((he/him/his)) – National Institutes of Health
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    1:15 PM – 2:30 PM ET
    Ethics of Referral Relationships in Clinical Research Recruitment
    Location: Galena (Fourth Floor)
    Presenter: Isabella Li, BA – National Institutes of Health
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    1:15 PM – 2:30 PM ET
    Modeling the human brain: ethical issues at the current frontier of brain organoid science
    Location: Laurel CD (Fourth Floor)
    Presenter: Katherine MacDuffie, PHD,MA ((she/her/hers)) – Seattle Children's Research Institute, University of Washington
    Presenter: Aurora Washington, PHD ((she/her/hers)) – University of North Carolina- Chapel Hill
    Presenter: Juli Bollinger, MS – Johns Hopkins
    Presenter: Han-Chiao Isaac Chen, MD – University of Pennsylvania
    Research Ethics and Social Sciences
  • Saturday, Oct 14th
    1:15 PM – 2:30 PM ET
    When risk cannot be eliminated in HIV "cure" trials
    Location: Galena (Fourth Floor)
    Presenter: Gail E. Henderson, PhD – UNC School of Medicine, Chapel Hill, NC
    Research Ethics and Social Sciences